In the News

30 January, 2024

BBC Reminds Dragons' Den Viewers Not To Put Things In Their Ears

Even if everyone on TV is telling you to do it, that doesn't mean you should.

30 January, 2024

Good Sorts: Bed-Ridden Woman Helping Others With Similar Condition

For a large part of the past three decades, Wendy Mathews has been in bed, and continuously for eight years. “I don’t really get out of it, I’m here 24/7.” She has myalgic encephalomyelitis (ME), a neuro-inflammatory disease that causes profound fatigue unaffected by rest. But while Wendy is bed-ridden, she isn’t idle. “Everything I have or need to do, I have to do here in bed.” In 2017, Wendy created a charity called Rest Assured. It offers food deliveries, support, and comfort to those stuck at home with ME, chronic fatigue syndrome, or fibromyalgia.

30 January, 2024

Letter That Forced BBC To Pull Dragons' Den Episode Over Safety Fears Revealed

The letter that resulted in the BBC taking down an episode of the Dragons' Den over safety concerns has been revealed. The multimillionaire Dragons were almost falling over themselves to present an offer to Giselle Brooks after she pitched her 'Acu Seeds' company, but her product's effectiveness has since come under question.

29 January, 2024

Living With Chronic Pain That Even Doctors Don’t Believe - This Is Fibromyalgia

People with fibromyalgia feel widespread pain - but their medical tests come back normal. Not only does this baffle doctors, patients also question if their constant muscle aches, joint pain, and tiredness were simply imagined. Fibromyalgia has no known cause or cure, and its symptoms - such as chronic fatigue, depression and brain fog - can be mistaken for other conditions like arthritic or autoimmune diseases. Four people share what it’s like to live with it, and the challenges of getting a diagnosis.

29 January, 2024

Tonix Study Reveals Promising Fibromyalgia Treatment

Tonix Pharmaceuticals Holding Corp. (Nasdaq: TNXP) said it showed additional safety and tolerability data, marking the second positive Phase 3 study assessing TNX-102 SL for fibromyalgia management.

29 January, 2024

Unwell Sussex Woman Left Without Heating And Water For More Than A Week

A Sussex woman has been without heating or hot water for nine days despite repeated requests to her housing provider. Debbie Aldridge, who lives in Lewes, has fibromyalgia, asthma and a heart condition.

28 January, 2024

Online Survey Reveals Perspectives, Desires For Understanding In Patients With Fibromyalgia

Results of an online survey revealed patients with fibromyalgia reported confusion regarding a variety of aspects of their condition, including the cause and symptoms, as well as a desire for the people in their lives to be more understanding, according to research published in Patient Education and Counseling.

28 January, 2024

Long Covid Support Offers Light At The End Of The Tunnel, Patient Says

There "is light at the end of the tunnel" for people with long Covid on the Isle of Man, a patient with the condition has said.

28 January, 2024

COVID Variant JN.1 Is Not More Severe, Early CDC Data Suggests

Early data from US hospitals suggests the latest COVID variant, known as JN.1, is not leading to more severe disease, a Centers for Disease Control and Prevention official said Monday, as the agency has tracked the strain's steep rise to an estimated 85.7% of COVID-19 cases nationwide.

27 January, 2024

How Health And Safety Are Compromised For People Living With Long COVID And Intimate Partner Violence

What happens when a person is experiencing long COVID and intimate partner violence at the same time? There’s been no attention paid to this question anywhere in the world since the onset of the pandemic in 2020. This is staggering, given previous research shows women who are victim-survivors of intimate partner violence are twice as likely to develop long-term illnesses, including chronic fatigue syndrome and fibromyalgia.